I detest labels

2008 July 22
by Brian

“Dissociative Identity Disorder, as defined by the American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders (DSM), is a psychiatric diagnosis that describes a condition in which a single person displays multiple distinct identities or personalities, each with its own pattern of perceiving and interacting with the environment. The diagnosis requires that at least two personalities routinely take control of the individual’s behavior with an associated memory loss that goes beyond normal forgetfulness; in addition, symptoms cannot be due to substance abuse or medical condition. The DSM is explicit about the controversy (roughly half of North American mental health professionals do not consider DID to be an actual condition) over the condition, identifying both the objective evidence of physical and sexual abuse in the history of individuals diagnosed with DID and that individuals accused of abuse are motivated to deny or distort past actions, but also points out that childhood memories may be distorted, and that individuals with DID are highly hypnotizable and unusually vulnerable to suggestion. Individuals with DID demonstrate a variety of symptoms with wide fluctuations across time; functioning can vary from severe impairment in daily functioning to normal or high abilities. Symptoms can include: multiple mannerisms, attitudes and beliefs that are dissimilar to each other, headaches and other body pains, distortion or loss of subjective time, depersonalization, amnesia, depression. Patients may experience an extremely broad array of other symptoms that resemble epilepsy, schizophrenia, anxiety, Mood disorders, posttraumatic stress, personality, and eating disorders.”

In my page “About Being a Multiple Personality” I talked about my experience from the time I began blogging in February 2006, to the emergence of Dewy Knickers on June 14th, 2006, to my realization on November 18th, 2006 that Dewy was a real woman, to the troll attacks the rest of the year, to my illness for the next five months, to the reordering of our mind into six different personalities. But what I didn’t make clear and what is confusing and to some very upsetting is the ‘label’ I placed on myself as a multiple personality.

1. I have never been tested for or diagnosed as having DID.
2. I do not have memory loss at this time.
3. I have never taken drugs or drank alcohol.
4. I was eleven years old in 5th grade and had no memories of 4th grade at that time and very few memories from 3rd grade back.
5. I have no memories of being sexually abused during this time.
6. I started wetting the bed when I was six years old and wore diapers in 1st grade.
7. I stuttered until I was 13 years old and saw a speech therapist.
8. There is a documented history of sexual abuse in our family going back several generations.
9. I was diagnosed with CFS (Chronic Fatigue Syndrome) in 1996/97.
10. We consider ourselves to be multiple personalities.

Number 10 is what some with DID take offense to and has resulted in some heated conversations. Number 10 does not mean I consider DID a joke or a condition created by therapists. Number 10 does not mean I am seeking attention. Number 10 does mean that I trust myself and my experiences over a clinical diagnosis.

11. I am frequently depressed and have been prescribed in the past with medication but not since I started blogging.
12. I have constant thoughts of death but have never attempted suicide.
13. I have not sought out a therapist since 1997-2000 when Little Brian and Pit Bull emerged.
14. My blog name is “Truth is Freedom” because the truth, my truth has changed my life for the better.
15. I began blogging because of what happened to Louise Ogborn and many other women and men who were caught up in the strip search madness. I have consistently and forcefully written out against abuse of all kinds.
16. I use my real and full name because we will no longer live in darkness and fear. I am proud to be a multiple personality and we will emphatically support anyone who seeks to heal from trauma of any kind.
17. I can talk and/or sense any of my others when they choose to be open.
18. Rose and I can coexist in any percentage from 1% up to 100%.
19. Rose Dewy Knickers is a real woman: end of discussion.

The story of my life is just that; my life, no one else. Whether you have been reading from the beginning of my blog or this is the first post you’ve ever read, the simple fact is, that I detest labels. What am I should have no bearing on who you are and who you are should be someone that is happy and healthy. If you are not happy and healthy then it is your right as a divine creation to have access to the help you require. The sad facts are that for many, too many, proper care is unavailable. The state of mental health care in the world and in America is a disgrace. A disgrace! Animals are treated better and with more kindness than most people with either mental or physical conditions.

Our reality is that children who are abused are often blamed for causing the abuse. They learn to hide, some fragment and some become multiple personalities. I will make this as clear as I can:
We are multiple personalities and

we
will
not
hide
any
longer.

25 Responses leave one →
  1. 2008 July 22

    Too many people try to tell others how to think/feel/act/believe. Too many people who think that everyone who isn’t just like them, is against them — or making fun or them. Too many people ….

    Everyone needs to step back, put down the fisty-cuffs (and the keyboards) and realize that judging other people’s thoughts/lifestyles/personalities can never be done from an objective viewpoint. If one pops onto a blog and doesn’t like what one finds, they are free to pop back off. There is no reason to leave hate and anger behind — especially those who refuse to leave their identity and address along with the hate and anger.

    Stand tall, Brian. You aren’t demanding that everyone likes and approves who you are. You aren’t breaking any laws or causing anyone harm. You are just seeking the right to be. It is little to ask and no more than human descency should allow.

  2. 2008 July 22

    Thank you Quill and I appreciate your sentiments. I have always tried to be supportive and understanding of other people and their problems. Despite everything I do try to believe that most people are decent and caring. I can see the point of view of those that have DID, but all I’ve ever asked on my blog is that people respect me for what I write about and what I stand for.

    Abuse is always wrong.

  3. 2008 July 22

    Brian, I’m so sorry that you have had to suffer from the effects of DID or CFS. I like the man I have have come to know and the beauty he holds inside. I hate labels like ALS, DID and CFS. They are all different in each person. I’ve been accused of not having ALS because I’m still alive so I stopped allowing doctors to dictate my treatment. I have the last word now but I do listen for new treatments and want that cure.

    Be happy and true Brian. :) HUGS

  4. 2008 July 22

    (((((Brian))))))

    excellent piece… no one should apologise for being who they are and believing in the things they do. I think Bon Jovi kinda sums it up well:

    Welcome To Wherever You Are

    Maybe we’re different, but we’re still the same
    We all got the blood of Eden, running through our veins
    I know sometimes it’s hard for you to see
    You come between just who you are and who you wanna be

    If you feel alone, and lost and need a friend
    Remember every new beginning, is some beginning’s end

    [Chorus]
    Welcome to wherever you are
    This is your life, you made it this far
    Welcome, you gotta believe
    That right here right now, you’re exactly where you’re supposed to be
    Welcome, to wherever you are

    When everybody’s in, and you’re left out
    And you feel you’re drowning, in a shadow of a doubt
    Everyone’s a miracle in their own way
    Just listen to yourself, not what other people say

    When it seems you’re lost, alone and feeling down
    Remember everybody’s different
    Just take a look around

    [Chorus]

    Be who you want to, be who you are
    Everyones a hero, everyones a star

    When you wanna give up, and your hearts about to break
    Remember that you’re perfect, God makes no mistakes

    http://uk.youtube.com/watch?v=qk74a-BX5wE

  5. 2008 July 22

    Tammy, it’s hard to believe sometimes that anyone would accuse you of not having ALS. Why would you want to be disabled? Why would anyone want CFS or DID or cancer or any disease? It’s horrible to be sick and know you’ll never get any better. ((((hugs)))))

    Ann, thanks for the videos and love and thank you for being a best friend to Rose.

  6. 2008 July 23

    Labels. Oh, you can imagine how often I have to deal with that, especially with my middle son regarding all his issues. Trying to label what is “wrong” with him is like putting a square label on something round.

    Anyway, I’m proud of you.

  7. 2008 July 23
    DaBich permalink

    (((((((((Bri~*~*~*))))))

    Have I told you lately how much I appreciate you and how much you’ve touched my life?

    Tell it like it is, man!

  8. 2008 July 23

    Thanks Brian for being you and for showing me that speaking out for those that can’t is a noble calling.

    Rose

    xo

  9. 2008 July 23

    Hi Brian…

    Your post comes at an interesting time. I am a survivor of Lyme disease. By all appearances, I’m normal, but I’m left with lasting effects after having had it (arthritis, increased nervousness and anxiety, occasional mental fog) that mostly don’t get in my way, but there are days. I’ve been thinking about this more lately and realising I might have to be gentler with myself than I have been.

    So….I just have to say that you are strong because of fighting and surviving.

    Cheers,

    Nicole

  10. 2008 July 23

    Brian, your honesty is wonderful! I admire you for being truthful. Thats all that I can say.
    And I think its good that you have started to question the labels. Each individual is different and often doctors just see people as numbers or statistics, not as individual beings.

  11. 2008 July 23

    Marvellous post. As you know, I hate labels, too. People are what they are. As long as they’re happy with it, the rest can butt out.
    And don’t start me on the labels that have been attached to me as a long time cfs sufferer …

  12. 2008 July 23

    Thank you Kila. I am/was will always be both amazed and saddened by the labels stuck on children.

    (((((DB))))

    No you haven’t! *stamping feet and pouting*

    Rose darlin’. You do have a way with words… I should let you out more often. :P

    Nicole, thanks for sharing your story and for linking so often to my posts. Having come down with CFS while living in Connecticut, my first thought was Lyme disease, but tests revealed nothing.

    Nita, thank you (from one who challenges assumptions every day on your blog). A personal note, everyone should read Nita’s blog about India. It is journalistic in tone and content and shines a spotlight where it’s needed.

    Anthony, I know. Lazy, slow, it’s all in your head, you should eat more/less, drink more/less, it’s all in your head…

  13. 2008 July 23

    Hey Brother.

    See your still inspiring the masses into unity.

    I am in therepy now…..why I was raped when I was 15, and I kept on allowing each man I meet to hurt me as all I wanted was to feel something anything, but it never happend.
    Why am I sharing, no sympathy for me….because I stand with you and Rosy…..we will not hide anymore.

    You and Rosy is a constant inspiration to me…..stand tall, the only label you must wear is AMS(Amazing human souls)

    Love you my brother from another mother…hihih….
    HUGZ
    D:)

  14. 2008 July 23

    Dearest sister,

    No sympathy, only my shoulders to lean on – and Rose’s rounded assets – and my deep devotion and love for you. We do stand together against rape and abuse and the violation of souls that takes place in every culture and every place around the world. You can heal and we can heal and you will find the peace you need and the person you need for the next stage of your life. Whatever it takes and whatever you require, we will give to you from our heart.

    Love

    Brian and Rose

  15. 2008 July 24

    well brian,, i personally feel that the medical community has done way more harm than good by applying labels to us… at 25 i was diagnosed with a label that has haunted me the rest of my life,, it keeps me from exploring treatment and gives me license to do things that i know are not healthy… i wonder sometimes who i might have become had they never spoken those words to me…

    you are a pillar in the mental health community here on the web as far as i am concerned.. and yes, my dear,, truth is freedom….

  16. 2008 July 24

    Names are needed for “standards” and thus diagnostic purposes. Which is needed only if you get disability. Many of us don’t and thus don’t need labels but they do a partial job of explaining.

    I don’t mind saying that I have NLD though I think non verbal is the opposite of what it means

    What bothers me is when people find out about these labels and stop treating people as they would have before or they treat everybody else

    I just found out about this condition last year and have spent the year learning everything I could about it which isn’t much. Now I feel in mourning for the person I could have been without it as I am intelligent , articulate and come from a family that thought I could do anything if only I tried more. If I really could have I would have been unconditionally supported in anything I attempted

    One person too many asked if I just wanted to publicize this or wanted articles and/or books.

    I’m overly sensitive right now. I’m not sure blogging is good for me as anybody who sees me or spends ten minutes with me knows I’m not Mother Teresa, and am a person who attracts not repels and that’s what that comment makes me feel

    There is a lot in life I gave up as I didn’t know what was wrong and didn’t want to inflict a partner or child. That was a very conscious and difficult decision. I left jobs as I thought I would possibly screw up. I wouldn’t have to sell my apartment if I hadn’t this. I didn’t leave jobs because I detest working. I would get physically ill. I worked in the wrong types of jobs as I didn’t know what was wrong

    So damn I deserve what I can get

    As to y’all, Brian and Rose I think you’re doing just fine, and have a strength few people ever have
    xoxo
    ~pia

  17. 2008 July 24

    Paisley you speak for many when labels stick. One of the worst labels though is ‘You’re not trying hard enough’. Every single person I’ve ever met has had at least one (many times much more) thing that they struggle with. And every single one of those people feels guilty because ‘They’re not trying hard enough’. Sometimes, no matter how hard you try, there are things that are beyond your capacity to accomplish. It may be mental or physical or emotional, but it is real. Throwing away that label for me meant I could begin to accept the truth of my life.

    Pia you are correct that a diagnosis is not a label. The label is on the box you are then tossed into with everybody else. A diagnosis doesn’t mean you have the identical problem. Seeking attention is not why the article about NLD was published and it’s not why this post was published. My blog serves as a mirror to my soul. I hold it up and the labels become visible. Even in the comments there are labels both given and received because that’s how human beings communicate. I’m this and you’re that and therefore we’re ________.

  18. 2008 July 25

    I got a troll too!!
    She (I know who it is…lol) doesn’t think my boys have special needs and they’re just spoiled. How many 8 yr olds do you know that can’t talk clearly, has meltdowns, and still needs help in the potty? That’s just to name a few things…lol
    Anyway, I hear ya!!
    On one of my yahoo groups about special needs someone described it this way ‘a label is a way of explanation and to help provide research, it is not an excuse, not all encompassing, and not a reason to attack.’
    I like that. It is so true. My boys have had many labels over the years and some fit them better than others. I call them the alphabet soup kids! Just pick a letter and a diagnoses and they’ll fit into it somewhere…LOL
    What people don’t know or refuse to realize is my Hubby has some of those traits and so do I. We learned to read, write, and socialize with the rest of the world. So be it. Everyone is different and without diversity, the world would be a pretty boring place!
    Tell the troll to shove it where the sun don’t shine :D
    Hubby says my troll is my biggest fan!! My one and only groupy…LOL
    She hits my blog more than I do!

  19. 2008 August 3

    Jen, it’s so true that labels are used as weapons. It’s so sad.

  20. 2008 August 28

    I’m choked up, Brian…really. Where do you find your strength? As I am working through the mental health system…you wrote that you have frequent thoughts of death. HELLO. I wonder if there has ever been any pole taken from adult survivors of abuse…how many of us think of death all the time? How many of us have suicide so close to the edges of our consciousness…how many of us must control and dispense those thoughts to the furthest reaches of our minds…
    I’m so happy to have come across this post. Happy…and sad. Make sense?

  21. 2008 August 29

    ((((((Riccie)))))

    Not sure my love, but I know I get strength from friends such as you.

  22. 2008 October 17

    thank you Brian, and Rose, for helping to make my already “worth living old age”,an even more “worth living” old age. This time last year, I didn’t know the two of you, as well as others I’ve met by blogging, even existed. Now, you’re each and every one a cherished friend. As I so often say: I’m one lucky old woman.

  23. 2008 October 18

    Thank you Mary, it’s a joy knowing that you care for us.

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